Keeping up with work may lead to spending evenings and weekends recovering from the effort.Taking a shower may leave someone with ME/CFS bed-bound and unable to do anything for days.Shopping at the grocery store may cause a physical crash that requires a nap in the car before driving home or a call for a ride home.Attending a child’s school event may leave someone house-bound for a couple of days and not able to do needed tasks, like laundry.People with ME/CFS may not be able to predict what will cause a crash or how long it will last. Sometimes patients may be house-bound or even completely bed-bound during crashes. It may take days, weeks, or longer to recover from a crash. People with ME/CFS often describe this experience as a “crash,” “relapse,” or “collapse.” During PEM, any ME/CFS symptoms may get worse or first appear, including difficulty thinking, problems sleeping, sore throat, headaches, feeling dizzy, or severe tiredness. This is known as post-exertional malaise (PEM). Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness.Was not a problem before becoming ill (not life-long).
This drop in activity level occurs along with fatigue and must last six months or longer. Greatly lowered ability to do activities that were usual before the illness.Also called “core” symptoms, three primary symptoms are required for diagnosis:
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